How to Interpret Genetic Test Results
​
Sydni Beeley
UNC-Greensboro Genetic Counseling Program
May 8, 2024
Malan Syndrome and Communication
Christal Delagrammatikas, PhD
Malan Syndrome Foundation
January 20, 2022
First Annual Scientific Roundtable-
Patient Registry Update
December 16, 2021
First Annual Scientific Roundtable- Malan Syndrome: Development and Behavior
Paul Mulder, PhD
Lentis Psychiatric Institute
Anxiety and Autism Spectrum Disorder in Malan Syndrome
Josh Goulding-Talbot, PhD
University of Leicester; The University of Sheffield
December 9, 2021
Guardianships, Conservatorships and Special Needs Trust:
A Primer
Marisa Lepore Hovanec, Esq
November 11, 2021
IEP Development and
Best Practices
Carly Fredericks
Deaf-Blind Specialist
May 1, 2021
Introduction to DIR and Floortime- Part II
Deborah Bauch, MS, OTRL
Astra Center for Neurodiverse Development
March 26, 2021
Introduction to DIR and Floortime- Part I
March 19, 2021
Children with CVI: Behavioral Outcomes and Educational Approaches
Amanda Lueck, PhD
Professor Emerita
San Francisco State University
February 26, 2021
Neurobehavioral Manifestations of Malan Syndrome
Jacqueline Harris, MD, MS
Kennedy Krieger Institute; Johns Hopkins Hospital
January 14, 2021
HOME
ABOUT MALAN SYNDROME
WHO WE ARE
RESEARCH
CONNECT
DONATE
More