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2024

How to Interpret Genetic Test Results

Sydni Beeley

UNC-Greensboro Genetic Counseling Program

May 8, 2024

Archives

Malan Syndrome and Communication

Christal Delagrammatikas, PhD

Malan Syndrome Foundation

January 20, 2022

First Annual Scientific Roundtable-

Patient Registry Update 

Christal Delagrammatikas, PhD

Malan Syndrome Foundation

December 16, 2021

First Annual Scientific Roundtable- Malan Syndrome: Development and Behavior

Paul Mulder, PhD

Lentis Psychiatric Institute

December 16, 2021

Anxiety and Autism Spectrum Disorder in Malan Syndrome

Josh Goulding-Talbot, PhD

University of Leicester; The University of Sheffield

December 9, 2021

Guardianships, Conservatorships and Special Needs Trust:

A Primer

Marisa Lepore Hovanec, Esq

November 11, 2021

IEP Development and

Best Practices 

Carly Fredericks

Deaf-Blind Specialist

May 1, 2021

Introduction to DIR and Floortime- Part II

Deborah Bauch, MS, OTRL

Astra Center for Neurodiverse Development

March 26, 2021

Introduction to DIR and Floortime- Part I

Deborah Bauch, MS, OTRL

Astra Center for Neurodiverse Development

March 19, 2021

Children with CVI: Behavioral Outcomes and Educational Approaches

Amanda Lueck, PhD

Professor Emerita

San Francisco State University

February 26, 2021

Neurobehavioral Manifestations of Malan Syndrome

Jacqueline Harris, MD, MS

Kennedy Krieger Institute; Johns Hopkins Hospital

January 14, 2021

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The information provided on this website is not intended to be a substitute for professional medical advice. No images on this site may be used without the written consent of the Malan Syndrome Foundation.

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