The Malan Syndrome Foundation hosted its second Malan Syndrome Family and Scientific Engagement Conference in Orlando, FL (USA). The event brought together over 180 attendees, including families, scientists, and researchers from seven different countries. This large group came together to learn from one another, share their experiences, provide information on the latest findings, and build connections that foster life-changing relationships and future collaborations.

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The Malan Syndrome Foundation believes that connecting families with scientific knowledge and creating a supportive community are essential in continuing our mission to improve the lives of all those living with Malan syndrome.