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RESEARCH STUDIES FOR MALAN SYNDROME

Principal Investigator: Arvind Chandna, MD, FRCO

Research Institution: The Smith-Kettlewell Eye Research Institute

Research Study Title: The Visual Brain and the Optic Nerve- Malan Syndrome

Status: Active 

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If you are interested in participating or need additional information, please contact the research coordinator for this study, Sylvia Veitzman, at seelab@ski.org

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Principal Investigator: Senyene Hunter, MD, PhD

Research Institution: University of North Carolina at Chapel Hill

Research Study Title: Neurological Phenotyping in Malan Syndrome

Status: Active 

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If you are interested in participating or need additional information, please contact the research coordinator for this study, Stephanie Peck, at 919-445-6978 or GDNDD@neurology.unc.edu

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The information provided on this website is not intended to be a substitute for professional medical advice. No images on this site may be used without the written consent of the Malan Syndrome Foundation.

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